The NF2 Crew is primarily an email based support group for patients and families with Neurofibromatosis 2. There are no costs for membership, the only requirement is that you be able to send and receive internet email.

Our Membership spans the globe and is open to any NF2 patient or family no matter where in the world they live. We are a very diverse group with the common bond of NF2. We share experiences, jokes, support, suggestions and occasionally even host real-life get togethers.
 

Guidelines

In order for the NF2 Crew to survive and provide a pleasant and comfortable atmosphere for everyone, we've established some basic guidelines for operation of the group. Anyone thinking of joining the crew, should first review these guidelines.

Please read the guidelines.  If you agree with then, click on the link below to join.

  1. Name: This independent group shall be named the NF2 Crew.  We are a self-governing body with no associations to any other group or entity. 
  2. Recipients: Membership is open to people with NF2, their family members, and any original members not meeting either of these criteria.
  3. There is no limit to the number of members who may join.
     

  4. Use of the List: Posts are confidential and intended for the group's members only. Do not copy to any non-member, or use or disclose information about any member in a group posting without that individual's express written consent. This does not apply to medical articles or information on medical providers, treatment information or concerns that are non-personal in nature or to shared humor containing no member information. The names and/or email addresses of the members shall be CONFIDENTIAL and not to be given out for any reason without the express permission of EACH person whose name and/or email address shall be shared. 
  5. Non-flaming: All members are expected to be courteous and appropriate when responding to or posting in reference to, other members. This group is intended as both a source of camaraderie and one of resources.  Members can say pretty much anything they want as long as it is said with consideration and basic courtesy. Disagreement is to be expected and open discussion is encouraged, with the provision that disagreements be addressed to issues and NOT to individuals or their qualities. (Debate the issues, not the person) 
  6. Bios: Each members is encouraged to submit a brief profile (bio).  Someone will be contacting you after your application is approved to explain to you fully about the profiles.  Only after submitting a bio will you be allowed to access other members bios.

I agree to these guidelines and want to join! 
This will send a email to our subscription address. 
Leave the email blank.

Labelled with ICRA