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The following is a list of NF2 doctors who have been mentioned by at least one Crew member as having a verifiable reputations as experts.  Please note though: being listed here is an acknowledgement or endorsement, and not necessarily a recommendation.  Read our full disclaimer for more information about what you can find on the NF2 Crew website.

Medical Clinics/Teaching Hospitals

Pittsburgh Ear Associates, 
("Practice limited to the Ear, facial nerve and related structures".)

NF2 Clinics

Barrow Neurological Institute
350 W Thomas Rd
Phoenix, AZ 85013-4409
Ph: (602) 406-3000. 
Loretta Wu: genetic counselor/coordinator 

Neurofibromatosis Clinics Association
P.O. Box 14185
Pittsburgh, PA 15239
(412) 795-3029 (phone) 
(412) 795-3098 (fax)

Neurofibromatosis Clinic at Massachusetts General Hospital
Wang Building
ACC 835
Boston, MA 02114
Tel; 617-724-7856 Fax: 617-726-5736 
Mia Maccollin M.D., Director
NF Clinic at Cedars-Sinai Medical Center

Medical Genetics-Birth Defects Center
444 S. San Vincente blvd, Suite 1001
Los Angeles, CA. 90048

With Baylor College of Medicine/Texas Children's Hospital in the Texas Medical Center, Houston, Texas
NF2 CLINIC (held one Friday each month)
Sharon E. Plon, MD, PhD
Assistant Professor
Departments of Pediatrics and of Molecular and Human Genetics
6621 Fannin, MC3-3320
Houston, Texas 77030-2399
PH: 713/770-4280
Fax: 713/770-4294

NF Clinic
North Broward Hospital
Dr. Mslew Baue, Director
Fort Lauderdale, FL
Specialties: both NF1 and NF2

NF CLINIC at the Cleveland Clinic FDN
Dr. David Rothner
Dr. Glen Stevens
9500 Euclid Ave.
Cleveland, OH 44195-5045
Tel: 216-444-5514
Fax: 216-445-9139
NF1 & NF2
Multi-disciplinary clinic
Will refer to other specialists
Holds NF Educational Programs
Clinic opens: (9am-5pm)


Wladimir Wertelecki, M.D.
Professor and Chairman
Dept. of Medical Genetics
University of South Alabama
Room 214, CCCB
Mobile, AL 36688
PH: 1-800-624-1865
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Dr. Robert F. Spetzler, M.D.
Neurological Surgery
Barrow Neurosurgical Associates, LTD.
2910 North Third Avenue
Phoenix, Arizona 85013

Arizona Otologic Associates, LTD.
C. Philip Daspit, M.D., F.A.C.S.
Ear, FacialNerve and Skull Base
222 West Thomas Road Suite 114
Phoenix, Arizona 85013

4 ... Arkansas
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5 ...California
Dr. John R. Adler
R-155 Stanford University Medical Center
300 Pasteur Dr.
Stanford, CA 94305
415 723-5573 or nurse at 723-4720

Samuel Assam, MD
Neurosurgical Medical Clinic, Inc.
501 Washington, Suite 700
San Diego, CA 92103
PH: (619) 297-4481

Derald E. Brackmann, MD
Steve Otto, Research Audiologist
House Ear Institute
2100 West Third Street
Los Angeles, CA 90057
PH: (213) 483-9930
FAX: (213) 483-8730

Steve Otto, Research Audiologist
House Ear Institute
2100 West Third Street
Los Angeles, CA 90057

Griffith R. Harsh IV, M.D.
Department of NeuroSurgery 
Stanford University Medical Center
100 Pasteur Drive 
Stanford, CA 94305
PH: (650) 723-2013
FAX: (650) 723-7813

Dr, Ralph Nelson of the House Ear Clinic.
2200 West Third Street,
Los Angeles, CA 90057
213- 484-2642 (TTY)Lawrence H Pitts MD
Professor of Neurological Surgery
Department of Neurological Surgery University of California, San Francisco
clinical office:
UCSF/Mt. Zion Medical Center [Box1643]
2233 Post Street, Suite 3
San Francisco, CA 94115
telephone: 415.476.8595
fax: 415.476.7965
academic office
Moffitt Hospital [M-787, Box 0112]
505 Parnassus Avenue
San Francisco, CA 94143-0112
telephone: 415.476.1087
fax: 415.753.1772 Dr. Antonio De Salles
UCLA Neurosurgery/Radiosurgery
Pioneer Award Winner

Christopher Duma, MD
Good Samaritan Hospital
Neurosciences Institute
637 South Lucas
Los Angeles, CA 90017
PH: (800) 762-1692

William Devor, MD
Kaiser Permanente
4647 Zion Avenue
San Diego, CA 92120
Specialty: Neurology
PH: (619) 528-0061

Dr Michael Edwards
University of California at San Francisco
ANA associate

Robert E. Levine
Specialty: Ophthalmology?
PH: 310-860-0800
(near HEI)
PH: 213-413-7300 

Joseph Roberson, MD
California Ear Institute At Stanford 
801 Welch Road
Palo Alto, CA 94304
PH: (415) 494-1000

Stephen L. Saltzman, MD
Kaiser Permanente
4647 Zion Avenue
San Diego, CA 92120
PH: (619) 528-2597

San Diego

William H. Slattery III, M.D.
Associate, House Ear Clinic
2100 West 3rd Street
Los Angeles, CA 90057
PH: (213) 483-9930
FAX (213) 484-5900

Samuel R. Whitaker, MD
8737 Beverly Blvd Suite 103
Los Angeles, CA 90048-1828
PH: (310) 854-4452
Fax: (310) 854-6745
Second address:
Pacific Neuroscience Center
10900 Warner Ave Suite 101-B
Fountain Valley, CA 92708
PH: (714) 964-1506 SRW
Fax: (714) 964-3615
Specialty: Neurotology, skull-base surgery, facial nerve
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6 ...Colorado
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7 ... Connecticut
Dr. William Padula
Neuro-Optometric Rehab. Assoc.
PO BOX 1408
Guilford, Connecticut 06437
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8 ... Delaware
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9 ... Florida
William A. Friedman, MD
University Physicians
Box J-354
J. Hillis Miller Health Center
Shands Hospital
Gainesville, FL 32610
Specialty: Neurosurgery
PH:(352) 392-3561

Jacques Morcos, M.D. FRCS
Dept of Neurological Surgery
Lois Pope LIFE Center
1095 NW 14th Terrace, (D4-6)
Miami, FL 33136
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10 ... Georgia
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11 ... Hawaii
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12 ... Idaho
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13 ... Illinois
Leonard Cerullo, MD
Chicago Institute Of Neurosurgery and Neuro-Research
4501 N. Winchester Ave
2nd Floor
Chicago, IL 60614

Dr James Tunsgard
Director Neurofibromatosis Program
University of Chicago Hospitals and Clinics
5841 S Maryland Ave
Chicago, IL
Specialty: NF1 (especially children) 

Dr Priscilla Short: University of Chicago is a highly regarded research geneticist. She is particularly interesting because she seems to be the only physician in the world who has NF2
[Go back to the top].

14 ... Indiana
Dr. Karen Roos
Wishard Hospital
Indianapolis, IN
Specialty: neurology

Robert L. Campbell, MD.
Emerson Hall Room 139
545 Barnhill Dr.
Indianapolis, IN 46202-5124
Telephone: 317-274-8893
Specialty: Surgery (brain, spinal and orthopedic)

Richard T. Miyamoto, MD.
Riley Hospital
702 Barnhill Dr.
Room 0860
Indianapolis, IN 46202-5000
PH: 317-274-3556
If no answer: 317-274-5000
Specialty: Adult and Pediatric Otology (ENT)
Neurology - Skull Base Surgery
Hearing and Balance Disorders

Robert D. Yee, MD.
Professor and Chairman, Department of Ophthalmology
Indiana University School of Medicine
702 Rotary Circle, #344
Indianapolis, IN 46202-5175
PH: 317-274-7101
Specialty: Neuro-opthomalogist familiar with NF2
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15 ... Iowa
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16 ... Kansas
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17 ... Kentucky
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18 ... Louisiana
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19 ... Maine
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20 ... Maryland
Dilys M. Parry, Ph.D.
Genetic Epidemiology Branch, NCI
Executive Plaza North, Room 400
6130 Executive Boulevard MSC 7360
Bethesda, MD 20892-7360
PH: (301) 496-4947

Johns Hopkins Hospital, Baltimore Neurosurgery dept.. is rated one of the best in the country.

NF Inc. Awards:
Roswell Eldridge, James Gusella, Vincent Riccardi, Dylas Pary, James Tungsgard, Prescilla Short, Robert Martuza, and Martha Denkla.
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21 ... Massachusetts
Robert Martuza, M.D.
Higgins Professor of Neurosurgery
Chief, Neurosurgery Service
Massachusetts General Hospital
55 Fruit Street
Boston, MA 02114
PH:(617) 726-8581

Fred G. Barker II, MD
Massachusetts General Hospital
Brain Tumor Center
Cox 315
Fruit Street
Boston, MA 02114
PH: (617) 724-8772
FAX: (617) 724-8769

Micheal J. McKenna, MD
Mass Eye and Ear Infirmary
243 Charles Street
Boston, MA. 02114
PH: (617) 573-3672
FAX: (617) 573-3914

Dr Mia MaCollin Harvard/Massachusetts General
Developmental Neurogentics
Building 149, 13th Street
Charlestown, MA 02129
Tel: 617-724-7856
Fax: 617-726-5736

Robert Ojeman
Massachusetts General Hospital
Neurological Surgery
15 Parkman St.
Boston, MA 02114

Dr. Allan Thornton
Cox-3, Dept. of Radiation Oncology
Proton Beam Expertise
Mass. General
Fruit St.
Boston, MA 02114
PH: 617-724-1156
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22 ... Michigan
Alexa Canady, MD
Detroit, MI
Specialty: Neurosurgery

Dennis I. Bojrab, MD [ email ]
Jack M. Kartush, MD [ email ]
Michael J. LaRouere, MD [ email ]
John J. Zappia, MD [ email ]
Michigan Ear Institute
27555 Middlebelt Rd
Farmington Hills, MI 48834
PH:: (248) 476-4622
Fax: (248) 476-7390
Specialty: Otology/Ear Nose and Throat

Steven P. Dunn
Michigan Cornea Consultants
29829 Telegraph Rd
Southfield, Michigan 48034
PH: (248) 350-1130
Specialty: Cornea Treatment

Howard Feit, M.D.,Ph.D
Department of Neurology
Henry Ford Hospital
2799 West Grand Blvd
Detroit, MI 48202
PH: (313) 876-3577

Susan Fleming, Ph.D.
Oakwood Hospital
Dearborn, MI
Specialty: Swallowing-Disorder Therapy

Michael Nigro, MD
Michigan Institute For Neurological Disorders
28595 Orchard Lake Rd
Farmington Hills, MI 48334
PH: (248) 553-0010
Specialty: Pediatric Neurology

Timothy Nostrant, MD
University of Michigan Medical Center
Ann Arbor, MI
PH: (734) 936-4000 or (800)865-1125
Specialty: Gastrointestinal Disorders/Botulism Treatment of Dysphagia

Jonathan D. Trobe, M.D.
Professor of Opthalmology and Neurology 
Kellogg Eye Center 
Department of Opthalmology 
1000 Wall Street 
Ann Arbor, MI 48105-1912 
PH: (734) 763-9147 
Specialty: Neuro-Opthalmology
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23 ... Minnesota
Stephen Harner, MD
Mayo Clinic
Rochester, MN
Specialty: Ear Nose and Throat
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24 ... Mississippi
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25 ... Missouri
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26 ... Montana
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27 ... Nebraska
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28 ... Nevada
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29 ... New Hampshire
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30 ... New Jersey
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31 ... New Mexico
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32 ... New York
Dr. Gil Lederman
Staten Island Univ Hospital

Mount Sinai School of Medicine
Kalmon Post, M.D.
Professor & Chair, Neurosurgery
One Gustave L. Levy Place
Box 1136 New York, NY 10029
Phone: 212-241-0933
Fax: 212-423-9258 
Dr. Post is Chairman of the Department of Neurosurgery. His areas of expertise include Pituitary Tumors and Acoustic Neuromas.

Tanvir Choudhri, M.D.
Assistant Professor, Neurosurgery
One Gustave L. Levy Place Box 1136
New York, NY 10029
Phone: 212-241-8560
Fax: 212-831-3324 
Dr. Choudrhri is the Director of the Neurosurgery Spine Program

Isabelle Germano, M.D.
Associate Professor, Neurosurgery
One Gustave L. Levy Place Box 1136
New York, NY 10029
Phone: 212-241-9638
Fax: 212-831-3324 
Dr. Germano is Director of the Mount Sinai Medical Center Stereotactic & Functional Neurosurgery Program

Sujana S. Chandrasekhar, M.D.
Associate Professor, Otolaryngology
Phone: 212-241-9410

Also highly recommended is the neuro/oto team at New York University:

NYU Medical Center
Dr. Noel L Cohen
HCC 3 3C
550 First Ave
New York NY 10016
phone: 212 263 7373

Dr. John Golfinos
TWR 8 8R
530 First Avenue
New York NY 10016
212 263 2950
212 263 1680

Finally, if considering Gamma Knife in the New York metro area:

Columbia Presbyterian
Michael B. Sisti, M.D.
Assistant Professor of Neurosurgery
Department of Neurological Surgery
Neurological Institute
710 West 168 Street
New York, New York 10032

She has also had consultations with the following doctors at Johns Hopkins:

Dr. Alessandro Olivi
The Johns Hopkins Hospital
Department of Neurosurgery
Meyer 9-100
600 N. Wolfe Street
Baltimore, MD 21287  Phone: 410-955-0703
Fax: 410-614-9877

Dr. Lawrence Kleinberg
401 N. Broadway, Weinberg 1469
Baltimore, MD 21231-2410
phone: 410-614-2886
fax: 410-614-2982

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33 ... North Carolina
Dr. Robert Wilkens,
Duke Medical Center
(note: Robert Wilkens may not still be at Duke, he was there 11 years ago)

Takanori Fukushima, M.D., D.M.Sc.
Carolina Neuroscience Institute
3404 Wake Forest Road, Suite 303 
Raleigh NC 27615 
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34 ... North Dakota
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35 ... Ohio
Dr. Bruce Cohen
8500 Euclid Ave.
Cleveland, OH 44195
Phone: 1-800-CCF-CARE ext.49182
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36 ... Oklahoma
John J., Mulvihill, M.D.
Children's Hospital of Oklahoma
940 NE 13th St
Clinic 2 - Room 262103
Oklahoma City, OK 73104
Tel: 405-271-8685
Fax: 405-271-8697
NF1 & NF2
Clinic opens: (Tues & Weds 8:00am-3pm)
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37 ... Oregon
Oregon Health Sciences University (website)
3181 SW Sam Jackson Park Road
Portland, Oregon 97201

John B. Delashaw Jr. MD 
Dept of Neurological Surgery
Division of Skull Base Surgery and Neuroncology
3181 SW Jackson Park Road 
Portland, Oregon 97201-3098
PH: 503-494-7737 or 800-494-4314 
FAX: 503-494-7161

Sean O. McMenomey, MD, FACS 
Dept of Otolaryngology
Head & Neck Surgery & Neurosurgey 
Physician's Pavilion, PV01 
3181 SW Sam Jackson Park Road
Portland, Oregon 97201-3098
PH: 503-494-8135
FAX: 503-494-4631
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38 ... Pennsylvania
Douglas C. Bigelow
University of Pennsylvania
3400 Spruce St.
Philadelphia, PA 19104
Specialty: Ear, Nose and Throat
PH: (215) 662-6970
Fax: (215) 349-5977

William Buchheit
Jefferson University Hospital
1016 Chestnut
Philadelphia, PA 19107
PH: (215) 955-6744

Takanori Fukushima, M.D., D.M.Sc.
420 East North Avenue, Suite 302
Pittsburgh, PA 15212-4746
PH: (412)359-6200, (412)359-4764 or 800-445-2340

Dr. Michael Goren
came from NIH, now at University of Pittsburgh. Medical Center
opthamologist /worked with John Mulvihill at NIH -- very familiar with NF2

Dade Lunsford in Pittsburgh - he brought Gamma Knife to North America, and Pittsburgh now has two;
Dept. of Neurological Surgery
University of Pittsburgh Medical Center
PH: 412-647-7744 or 412-647-3685

Dr. Maroon
420 East North Avenue, Suite 302
Pittsburgh, PA 15121-4746
PH: (412)359-6200 or 800-445-2340

Nicholas J. Volpe
51 N. 39th St.
Philadelphia., PA 19104
Specialty: Opthalmology
PH: (215) 662-8042
Fax: (215) 662-0133

Dr. Robert Selker
Specialty: Peacock Radiosurgery
West Penn Hospital

Pittsburgh Ear Associates, 
("Practice limited to the Ear, facial nerve and related structures".)
420 East North Avenue, Suite 402
Pittsburgh, PA. 15212
PH: (412) 359-6690
Fax: (412) 321-3229

Jack E. Wilberger Jr, M.D.
420 East North Avenue, Suite 302
Pittsburgh, PA 15121-4746
PH: (412)359-6200 or 800-445-2340

39 ... Rhode Island
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40 ... South Carolina
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41 ... South Dakota
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42 ... Tennessee
Dr. George Allen
Vanderbilt Univ. (Nashville)
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43 ... Texas
All with Baylor College of Medicine/Methodist Hospital in the Texas Medical Center, Houston, Texas:
Shiao Y. Woo, MD
Department of Radiology
Residency Program Director - Section of Radiation Oncology
6565 Fannin, DB1-37
Houston, Texas 77030-3498
PH 713/790-2091
Fax: 713/793-1301

David S. Baskin, MD, FACS
Departments of Neurosurgery and Anesthesiology
6560 Fannin, Suite 900
Houston, Texas 77030
PH: 713/798-4696
Fax: 713/798-3739

Herman A. Jenkins, MD
Newton J. Coker, MD
SM 1727
One Baylor Plaza
Houston, TX 77030
PH: 713 798 5900

(End Baylor Section)

Joseph Agris
Houston, TX
PH: (713) 772-4600

Herbert P. Edmundson, MD
Houston, TX
Specialty: Neurology

Robert G. Grossman, MD
Scurlock Tower
6560 Fanin
Suite 900
Houston, Texas 77030
Specialty: Neurosurgery
PH: (713) 798-4696

Martin L. Lazar, MD
Medical City Dallas Hospital
7777 Forest Lane
Suite B420
Dallas, Texas 75230
Specialty: Neurosurgery
PH: (972) 566-6444

Andrew G. Lee, MD
Depts of Opthalmology, Neurosurgery and Neurology
6550 Fanin
Suite 1401
Houston, Texas 77030
Specialty: Neuro-Opthalmology
PH: (800) 229-5676 or (713) 798-6100

Ed Maddox
Houston, TX

Lloyd A. Youngblood, MD
Brooks Army Hospital
San Antonio, TX

Jamie Patrinely, MD
Houston, Texas
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44 ... Utah
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45 ... Vermont
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46 ... Virginia
Richard L. Prass, MD
933 First Colonial Road
Virginia Beach, VA
Specialty: Ear, Hearing, Balance, Facial Nerve Disorders
PH: (757) 422-9300

David C Waters, Md
Norfolk, VA
Specialty: Neurosurgery
PH: (757) 625-4455
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47 ... Washington
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47a ... Washington DC
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48 ... West Virginia
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49 ... Wisconsin
Jacqueline Diehl,
OTR Facial Rehabilitation Specialist 
Neuromuscular Retraining Clinic
University of Wisconsin Madison
2710 Marshall Court
Madison, WI 53705
PH: (608)263-2935
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50 ... Wyoming
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Dr. Guilherme Carvalhal Ribas
Hospital Albert Einsten
Av.Albert Einstein, 627 Sala: 1308
Cep: 05651-901 - São Paulo – SP – Brasil
Fones: (55 11) 3742-3362/3747-3308
Fax: (55 11) 3744-5063
Bip: 5188-3838 Cód: 2020

Prof. Dr. Pedro Luiz Mangabeira Albernaz
Otorrinolaringologia – Otoneurologia
Professor Titular de Otorrinolaringologia da Escola Paulista de Medicina – Universidade Federal de São Paulo Av.Brigadeiro Faria Lima, 2639 – Conj. 31
Cep: 01452-902 – São Paulo – SP
Fones: (55 11) 3032-2198/9258
Fax: (55 11) 3814-1128

Prof. Dr. Julio Morais
Cirurgia Estética e Reparadora / Microcirurgia Reconstrutiva Av.Agami, 236
Cep: 04522-000 – São Paulo- SP
Fones: (55 11) 5051-4144/1725
Fax: (55 11) 5052-8702

Eliane Macedo de Mendonça Borges
Face- Fisioterapia Aplicada ao Corpo e Expressão
Rua Caçapava, 49 Cj:57
Cep: 01408-010 – São Paulo – SP
Fone: (55 11) 3286-0582
Fax: (55 11) 3884-4376

Dr. Eduardo Velutini
Pça Amadeu Amaral, 27 – 7°andar
Paraiso – São Paulo - SP
Fone: (55 11) 3262-1266

Dr. Ricardo Ramina
Rua Gonçalves Dias, 713 – Batel
Curitiba – PR
Fones: (55 41) 342-7442/373-8545

Dr. Paulo Henrique Pires de Aguiar
Rua Barata Ribeiro 237, Cj 103 - Bela Vista
São Paulo / SP
Tel : (11) 3259 1269 / (11) 3259 1266
e-mail :

Dra. Leide Almeida Praxedes
CEPID - Centro de Estudos do Genoma Humano
Rua do Matão, Travessa 13 número-106
Cidade Universitária - São Paulo / SP
Tel : (11) 3091 7966 Ramal-215

Prof. Phd.Edécio Armbruster de Moraes
e-mail :
Tel : (11) 3865 6974
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Dr. Ralph T. Manktelow
Division of Plastic Surgery
The Toronto General Hospital
200 Elizabeth Street
Eaton North 7 - 228
Toronto, Ontario
M5G 2C4
PH: (416) 340-5135
Fax: (416) 340-5157

J. M. Nedzelski, MD
Sunnybrook Medical Centre
2075 Bayview Ave.
Toronto, Ontario
M2N 3M5
PH: (416) 480-4141
Fax: (416) 480-5761

C. H. Tator, MD
The Toronto Hospital
Western Division
399 Bathurst Street
Toronto, Ontario
M5T 2S8
PH: (416) 603-5889
Fax: (416) 603-5298

Dr. Ronald M. Zuker
Division of Plastic Surgery
The Hospital for Sick Children
555 University Avenue
Suite 1524
Toronto, Ontario
M5G 1X8
PH: (416) 813-6447
Fax: (416) 813-6147
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Astrid Rasmussen MD, MSc
Department of Neurogenetics and Molecular Biology
Instituto Nacional de Neurología y Neurocirugía.
Insurgentes Sur 3877, Col. La Fama.
14269 México, D.F. México.
Tel. 5606 3822 ext. 2002.
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United Kingdom
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Copyright © 2004 NF2Crew.  All Rights Reserved.

Last Updated: 06/23/2005.

Labelled with ICRA