NF2 Groups on Facebook

With the popularity of Facebook, the Crew is most active here. If you haven’t yet joined;

Click here to Join The Crew on Facebook!

Simply click on the ‘Join Group’ button on our Facebook group page to join.

Facebook Group Cover Photo designed by a Crew Member

Members of the Crew have also branched out to form groups depending on the way NF2 has affected them. If you are looking for a more specific group relative to how NF2 has affected your lifestyle, please join any of the groups mentioned below.

TO JOIN: visit the link of interest and click the ‘Join Group’ button on their page. You must have a Facebook account. If for any reason, you wish to leave the Group, simply click the ‘Leave Group’ button on the Group page.

If you are aware of any other NF2 Facebook groups not listed here, please Contact Us.

Ohio Gathering - This is a group for those who are interested in attending the Ohio Gathering; an annual NF2 Crew event held over the Memorial Day Weekend (October).

NF2 Just Us - This is a group just for people with NF2. We would like to keep this group to just us. We love our non-NF2 friends and family, but this group is for us to rant about our worries.

NF2 Parent Support - Parents with NF2 Children - This group is for parents with a confirmed diagnosis of NF2 in their child/children.

NF2 Pediatrics - This group is for ALL parents of children, under the age of 18, who have NF2 or not and are wanting information/education/support in regards to the disorder.

NF2 Moms & Family Planning - A judgement free zone to discuss parenthood, family planning and the various options those with NF2 have.

NF2 Spouses, Partners & Significant Others - NF2 might be hard for people with NF2, but it can be just as hard and sometimes harder watching someone we love dealing with NF2. This group is a place to make friends with other people in the same or similar position.

Young NF2 - A group for the younger generation of NF2’ers to discuss their unique concerns and experiences.

Miss NF2 - A ladies only NF2 group to discuss personal matters.

NF2 Man Cave - A place where men with NF2 can talk or not talk about living with NF2.

ABI Users with NF2 - Discussion for those with/interested in Auditory Brainstem Implants (ABIs).

NF2 Neighbors of the Southeast (Neurofibromatosis Type 2) - For people with Neurofibromatosis Type 2, that live and/or are treated in the southeastern United States.

NF2 Canada - For people with Neurofibromatosis Type 2 who are located in Canada.

NF2 Association Facebook pages

Advocure NF2, Inc.

NF2 Smile Project


Children’s Tumor Foundation

Help Stop NF2 Foundation

NF2 Awareness UK