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Neurofibromatosis Type 2 (NF2) is a genetic disease that strikes every 1 in 40,000 people. It can be inherited or spontaneous and does not discriminate based on race, sex or even environment. While the disease is not completely rare, it is rare enough that the average NF2 patient may encounter few, if any, others with the disease in their lifetime. The NF2 Crew was formed to address this issue, members correspond with and meet other NF2 patients from around the globe. A most often heard phrase from new members is, "I didn't think anyone else was like me, I fit in here!" We exchange everything from information on treatments and research to trivia and jokes. One of our goals is accessibility and we offer a variety of Internet-based communication mediums.
Disclaimer: We are not medical experts nor affiliated with any healthcare organization or any other company. No information on this site or obtained from NF2 Crew members should be treated as medical advice and should only be used in conjunction with consultation by a medical professional.
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