The NF2Crew Website

In memory of Jordon Harlow one of the Crew

Jordon Harlow

The only place on the WEB for people with NF2 (and their families) to come together, face our challenges, and learn through sharing.

What is NF2?About JordenCrew HistoryContact usCrew FAQEventsJoin The CrewLinksNF2 DoctorsNF2 GlossaryPhoto Gallery

Carol's Quilts

The NF2 Crew is an online social and support group for patients and families with Neurofibromatosis Type II.  Membership is free and we have members from all walks of life spanning the globe.  We share our experiences with NF2 to the benefit of the entire group. 

Disclaimer: We are not medical experts nor affiliated with any healthcare organization or any other company.  No information on this site or obtained from NF2 Crew members should be treated as medical advice and should only be used in conjunction with consultation by a medical professional.


Join the CREW and subscribe to the main crew email list
(Main list for people with NF2 and their families to discuss various aspects of NF2) 

Join our "Social" email group
[You must be a Crew member to join this list]
(jokes, lyrics, non-NF2 social chat among crewbies -- over 18 please) 

Join the NF2_Roadcrew email
[You must be a Crew member to join this list]
(For Crew members who like to travel and meet other Crew members 
Check out our Las Vegas gathering pics and OZ (aka Australia) Adventure 2002 pics) 

Join the NF2ozline email group
(Support group and discussion list for Australians and New Zealanders with NF2)


Congressionally Directed Medical Research Programs

Department of Defense Neurofibromatosis Research Awards

PAK-1 research in Australia 
(scroll down towards the bottom of this article)

More on PAK-1

Denise Terrill Charity Classics


Copyright 2003, 2004 NF2Crew.  All Rights Reserved.

Labelled with ICRA