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Crew FAQ
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The NF2 Crew is an online-based support group for Patients and Families with Neuofibromatosis Type II. We are one of the largest NF2 based support groups in existence with over 400 members spanning the globe. Our "meetings" are held via e-mail Group Lists (this especially works well as many with NF2 are Deafened or Hard of Hearing). We also offer an online Message Board, plus we organize occasional "Crew gatherings" where members get together to meet in person Every member is either directly related to someone with NF2 or has NF2 themselves, though it can affect different people in different ways, one of the expressions we often hear from new members is "Wow, there is someone out there whose like me!" We share information on doctors, hospitals and treatments; as well as Non "tumor-talk" when you just need a break from NF2. Anything said is considered confidential, if a Crew member just needs to vent, share something of a personal nature or just ask a question, we want them to feel this is a safe haven.
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