The NF2 Crew is primarily an email based support group
for patients and families with Neurofibromatosis 2. There are no costs
for membership, the only requirement is that you be able to send and
receive internet email.
Our Membership spans the globe and is open to any NF2
patient or family no matter where in the world they live. We are a very
diverse group with the common bond of NF2. We share experiences, jokes,
support, suggestions and occasionally even host real-life get togethers.
Guidelines
In order for the NF2 Crew to survive and provide a pleasant and
comfortable atmosphere for everyone, we've established some basic
guidelines for operation of the group. Anyone thinking of joining the
crew, should first review these guidelines.
Please read the guidelines. If you agree with then, click on the
link below to join.
- Name: This independent group shall be named the NF2 Crew.
We are a self-governing body with no associations to any other group
or entity.
- Recipients: Membership is open to people with NF2, their
family members, and any original members not meeting either of these
criteria.
There is no limit to the number of members who may join.
- Use of the List: Posts are confidential and intended for
the group's members only. Do not copy to any non-member, or use or
disclose information about any member in a group posting without
that individual's express written consent. This does not apply to
medical articles or information on medical providers, treatment
information or concerns that are non-personal in nature or to shared
humor containing no member information. The names and/or email
addresses of the members shall be CONFIDENTIAL and not to be given
out for any reason without the express permission of EACH person
whose name and/or email address shall be shared.
- Non-flaming: All members are expected to be courteous and
appropriate when responding to or posting in reference to, other
members. This group is intended as both a source of camaraderie and
one of resources. Members can say pretty much anything they want as
long as it is said with consideration and basic courtesy.
Disagreement is to be expected and open discussion is encouraged,
with the provision that disagreements be addressed to issues and NOT
to individuals or their qualities. (Debate the issues, not the
person)
-
Bios: Each members is encouraged to submit a brief profile
(bio). Someone will be contacting you after your application is
approved to explain to you fully about the profiles. Only after
submitting a bio will you be allowed to access other members bios.
I agree to these
guidelines and want to join!
This will send a email to our subscription address.
Leave the email blank.
