All groups below are Yahoo based. To Join: Please click the logo of your desired group(s), which will direct you to their info page at Yahoo. Click the ‘Join Group’ button if you have a yahoo account, or send an email to the subscription link found near the bottom of the page.
If you are aware of an NF2 group that is not listed here, please let us know. We would be happy to add it to this page.
The NF2 Crew
The NF2 Crew mail list is an email based support group for NF2 patients and their family members. This is the main group for those with NF2, despite age or location.
The NF2 Zoobies list is for crewbies 18 and older who are looking to kick back and hangout with others. We laugh, we share jokes and we have FUN. Anything goes with us Zoobies so beware … enter at your own risk!
The NF2 Social list is intended for all crew members, as well as their kids, battling NF2. A family type environment where we can take a break from our health concerns and offer each other support and understanding.
A group for people affected by Nf2 and their families in the UK. Nf2 can be a very isolating condition so the group aims to offer support and provide an opportunity for discussion about all things related to Nf2.
The NF2 OZline is a support group and discussion list for Australians and New Zealanders with NF2.
The NF2 NYC Support Group meets approximately every three months in NYC at the center for Hearing and Communication in Manhattan. We share experiences, offer advice, support, and socialize.
The NF2 Roadcrew is social style group made up of people with NF2 and their families from the NF2Crew that enjoy traveling around the world together and social discussions. Please note, there has been no recent activity but those interested are still welcome to register.
NF2 Trial Talk
TrialTalk is a discussion group for people with NF2, who is either on or seriously interested in a clinical trial, and their immediate family. Please note, there has been no recent activity. Please deter your questions to the main group.