Neurofibromatosis Type 2 (NF2) is a genetic disorder that strikes every 1 in 25,000 people. It can be inherited or spontaneous and does not discriminate based on race, sex or even environment. While the disorder is not completely rare, it is rare enough that the average person with NF2 may encounter few, if any, other people with NF2 in their lifetime. To date there is no cure.

Ohio Gathering, 2011

The NF2 Crew was formed to address this issue, members correspond with and meet other others with NF2 from around the globe. A most often heard phrase from new members is, “I didn’t think anyone else was like me, I fit in here!” We exchange everything from information on treatments and research to trivia and jokes. One of our goals is accessibility and we offer a variety of Internet-based communication mediums.

A few excellent sources for additional NF2 background are AdvoCure NF2, Inc., Children’s Tumor Foundation and Neurofibromatosis, Inc. We also have many NF2 related resources on our Links page.

Disclaimer:  We are not medical experts nor affiliated with any health care organization or any other company. No information on this site or obtained from NF2 Crew members should be treated as medical advice and should only be used in conjunction with consultation by a medical professional.